This little man is only 6 months old.....but I have been able to photograph him 3 times already. It is so fun to see their personalities brighten and mature each time you see them. What a fun session. Don't you just want to squeeze him? 
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Here is a link to more information about the genetics of Schimke Immuno-Osseous Dysplasia that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Schimke_Immuno-Osseous_Dysplasia/709. There is also a number listed for anyone who wants to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA
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